Thursday, 16 September 2010
Hiya everyone :)
Saturday, 4 September 2010
Hiya everyone. Sorry I've not posted in a bit, loads of stuff has happened since my last entry. Yet not much of it I feel is worth posting about or I just don't know how to put it into words. So this is just a quick update.
I got the letter through this morning to say I'm officially on the active list. Which means from now on I could get the call at any time - day or night. I get quite frustrated when people ask about it and they always say 'so when are you getting your transplant?'. And quite often even if I try to explain it best I can, some just don't understand. So I'll have a go at putting it as simply as possible :) And let me know if there's anything you still don't get.
What happens is that when your on the list, it's not about 'first-come-first-serve', it all depends on what organs become available and whoever is a match (blood type, tissue type and even height) and needs them most at that time. No one knows when they'll get their transplant (weather its lung, kidney, heart, liver etc) because it all depends on who dies unfortunately. So when will I get my transplant? I don't have a clue. And I wont know until they have the lungs available, which is when I'll get a call and will be rushed down to Newcastle by ambulance or helicopter (woohoo!). It could be tomorrow, it could be 2 years from now.
Also I'll probably have a few false alarms where I'll get called down to Newcastle and find out that the lungs are unsuitable for transplantation or it cant go ahead for various other reasons like me being too unwell or whatnot.
BRING IT ON!!!
Last couple of weeks have been pretty crazy. I'm now living the single life now :P so out and about with mates more often and loads of time to do whatever I want really. Started attending the gym at the hospital for some exercise with the physio to help keep my muscles alive and me as fit as possible for when I get these new lungs!
Not really sure what else to tell you all. Everything's pretty good the now actually so the stress spots are finally leaving (which makes me less stressed naturally!)
I'll try keep this better updated and make it a bit more interesting with some photos and stuff :)
Much love! x